PHEDRE SURVEY
Disability Compensation Benefit: Long-term Implementation and Out-of-Pocket Payments

TEAM

Laurence Dauphin (DREES), Maude Espagnacq (IRDES), Stéphanie Guillaume (IRDES), Anaïs Levieil (DREES), Malika Zakri (DREES)

IMPLEMENTATION PERIOD

2016-2019

PRESENTATION

The PHEDRE survey focuses on the beneficiaries of the Disability Compensation Benefit (DCB, Prestation de compensation du handicap) who have received a notification of allocation following a request made in 2012. This survey is a collaboration between IRDES and DREES (Directorate for Research, Studies, Assessment and Statistics, Ministry of Social Affairs), supported by the CNSA (National Solidarity Fund for Autonomy).

MAIN OBJECTIVES

The aim of the survey is to address two main questions around the Disability Compensation Benefit:

  • Are there any discrepancies between the Personalised compensation plans notified by the Departmental house for disabled people (DHDP, Maison départementale des personnes handicapées) and what is actually implemented by the beneficiary?
  • What are the amounts of out-of-pocket payments for DCB beneficiaries?

The survey is based on three data sources: the Departmental houses for disabled people (DHDPs), the Departmental councils (DCs) and the beneficiaries.

METHOD

The survey will be conducted in four stages:

  • Administrative data extraction, which will take place from the end of 2016 and in 2017 (25 departments will be investigated):
    • Identification of the persons concerned by the survey from the databases of the Departmental houses for disabled people.
    • Recovery of payments from the DCB components paid by the Departmental council, which will identify those who have fully implemented their aid plan, those who have partially implemented it and those who have not implemented it at all.
  • An individual phase in 2018 (9 000 selected plans, 4 500 targeted beneficiaries replying face-to-face), consisting of a face-to-face survey conducted among a sample of beneficiaries present in the database resulting from the administrative data extraction ; the purpose is to complete the information on the financing of their aid and adjustments, and gather their feelings about the remaining out-of-pocket payments ; a questioning will also be added to identify their difficulties (or not) in implementing their aid plan or the causes of its abandonment (even partial) and finally, they will be asked about their use of aid, including that which is not funded under the DCB.
  • In 2018, a new collection of administrative data from the Departmental houses will make it possible to obtain the proposed aid plans and the individual characteristics of the sampled beneficiaries.
  • Finally, the individual data previously collected will be matched with health care consumption data from SNIIRAM (National Inter-Regime Information System on Health Insurance), in order to measure the level of use of beneficiaries and tax and social data to estimate their level of resources.

IMPLEMENTATION SCHEDULE AND PROJECT DEVELOPMENT

  • 2016: Development of the collection protocol, preparation of administrative returns.
  • 2017: Extraction of administrative data (DHDP, DC), preparation of the face-to-face questionnaire and the DHDP questionnaire, site preparation (face-to-face interview and DHDP questionnaire).
  • 2018: Face-to-face interviews, questionnaires in the DHDPs, data cleaning and weighting.
  • 2019: SNIIRAM matching, publications.
  • 2020: Matching with INSEE-DGFIP data (National Institute of Statistics and Economic Studies) on tax and social income